About Advocacy

ALSA of GA plays an important role in national advocacy for increased public and private support of ALS research and health care reform that responds to the demands imposed by ALS. ALSA monitors and provides its national grassroots network of passionate volunteers with the information and support needed to keep healthcare professionals, the biotech community, the media and lawmakers abreast of challenges, as well as opportunities at hand in the ongoing fight against the disease.

ALSA's advocacy efforts in Washington, D.C. have raised the profile of ALS at the White House, among members of Congress, and within federal agencies, including the National Institutes of Health, the Food and Drug Administration, and the Social Security Administration. Thanks to the participation of volunteer advocates throughout Georgia and across the United States, ALS was included among only twenty-eight diseases in the Department of Defense 2003 Appropriations bill $50 million Peer Reviewed Medical Research Program.

The ALS Association of Georgia encourages PALS, caregivers, families and friends to effect legislation, regulation, public policy and programs concerning the needs of persons with ALS while maintaining compliance with Federal Laws and Regulations governing lobbying activities of 501(c) 3 organizations.